Working together to reduce the global burden of kidney cancer
Kidney cancer is a major public heath challenge, with 1.37 million people currently affected worldwide. In 2022, there were 435,000 new cases diagnosed, and the incidence is projected to rise by more than 71% by 2050.
Click here for shareable information, graphics and materials about kidney cancer for patient organisations worldwide.
World Kidney Cancer Day 2026
The Kidney Cancer and Emotional Wellbeing campaign for World Kidney Cancer Day 2026 was a tremendous global success. On 18 June, the global kidney cancer community came together to raise awareness of emotional wellbeing, encourage more open conversations, and share information and tools to help people living with kidney cancer access support.
2025 Annual Report Now Online
IKCC’s 2025 Annual Report is now available. It is a comprehensive overview of all that was achieved to advance IKCC’s strategic priorities through programs that deliver long-term value to the global kidney cancer community.
Read all about IKCC’s 2025 activities and learn more about the organisation’s vision moving forward here.
More Posters and Publications from the 2025 Global Patient Survey on Kidney Cancer
Our efforts to bring evidence-based patient experiences and insights to scientific discussions and decision-makers continue. Read the updated overview of IKCC’s poster presentations and published abstracts at kidney cancer and oncology conferences that highlight results from the 2025 IKCC Global Patient Survey on Kidney Cancer.
Activities from three 2026 conferences have now been added: ASCO GU, IKCS:EU, and IARC.
Tweets from @IKCCorg
🇬🇷 An important step forward for people affected by cancer in Greece
Greece has now officially recognised the Right to be Forgotten for people with a history of cancer.
The new provision will come into force on 20 November 2026.
This is an important step towards reducing discrimination and supporting people living with and beyond cancer.
Congratulations to our partner ELLOK and everyone who worked to make this happen.
Read more:
#RightToBeForgotten #CancerSurvivorship #CancerCare
Right to be Forgotten: Statutory protection for people with a history of cancer now established in...
The Hellenic Cancer Federation – ELLOK welcomes the significant statutory recognition of the Right to be Forgot...
ncmh.ellok.org
A targeted therapy called tivozanib helped some patients with advanced #kidneycancer keep their cancer from getting worse for several months when used after earlier treatments had stopped working.
Read more about the study: https://actionkidneycancer.org/long-term-effectiveness-of-tivozanib-as-a-second-or-third-line-treatment-for-advanced-kidney-cancer/
Come & Join The MOVE!
Kidney Cancer Canada's Move to beat Cancer is live & welcoming participants, teams & donations, to make an impact on kidney cancer! You can join via our website by clicking the banner or scanning this QR Code!
All 'movement' is welcome!
What's your move!?
� IKCC 2025 Global Patient Survey: Who took part?
The 4th IKCC Global Patient Survey gathered responses from 2,677 people across 46 countries, 2,049 patients (77%) and 628 carers (23%).
The number of respondents increased by 19% compared with the previous survey.
The survey was designed to highlight the experiences, challenges and needs of people affected by kidney cancer. These findings help bring patient and carer perspectives into focus and support IKCC’s work to connect, represent and advocate for the kidney cancer community globally.
🔎 Read more about the survey respondents on page 4 of the IKCC Global Patient Survey: https://ikcc.org/wp-content/uploads/2025/05/2025_GPS_Highlights_Reports_IKCC_A4_interactive.pdf
🎙�Living With & Beyond Cancer | S2, Ep2
Cancer survivor Charlotte speaks with Steve Pointon about her journey through diagnosis, treatment and recurrence, as well as advocacy, uncertainty and the importance of support.
Listen to the latest episode: https://open.spotify.com/episode/40RsqU6ezk0FM8cCvuXmp1?si=kpjF6_iGS3aAKfKDgPVWpQ
How could artificial intelligence change the future of #KidneyCancer care?
@arihakimi @MSKCancerCenter shares which AI innovations have the greatest potential to improve patient care and highlights the area of kidney cancer research from #KCRS26 that he's most excited about.
Did you know?
Kidney cancer is often found by accident.
Kidney cancer is the 14th most prevalent cancer worldwide.
About 59 per cent of kidney cancer cases occur in more developed countries.
Our Global Network
IKCC welcomes every organisation that has an interest in kidney cancer and who pledges to conform to our Code of Conduct. We extend an open invitation to become part of this international network.
Join our mailing list
In the newsletter we highlight news about kidney cancer diagnosis and treatment, and other relevant discussions.