Working together to reduce the global burden of kidney cancer
Kidney cancer is a major public heath challenge, with 1.37 million people currently affected worldwide. In 2022, there were 435,000 new cases diagnosed, and the incidence is projected to rise by more than 71% by 2050.
Click here for shareable information, graphics and materials about kidney cancer for patient organisations worldwide.
Global Patient Survey on Kidney Cancer
The 5th IKCC Global Patient Survey on Kidney Cancer (GPS) is open until 20 November 2026. People affected by kidney cancer are invited to share their experiences and insights. The survey is available in 18 languages.
More Posters and Publications from the 2025 Global Patient Survey on Kidney Cancer
Our efforts to bring evidence-based patient experiences and insights to scientific discussions and decision-makers continue. Read the updated overview of IKCC’s poster presentations and published abstracts at kidney cancer and oncology conferences that highlight results from the 2025 IKCC Global Patient Survey on Kidney Cancer.
Activities from three 2026 conferences have now been added: ASCO GU, IKCS:EU, and IARC.
World Kidney Cancer Day 2026
The Kidney Cancer and Emotional Wellbeing campaign for World Kidney Cancer Day 2026 was a tremendous global success. On 18 June, the global kidney cancer community came together to raise awareness of emotional wellbeing, encourage more open conversations, and share information and tools to help people living with kidney cancer access support.
Tweets from @IKCCorg
The 5th @IKCCorg Global Patient Survey on #KidneyCancer is now open!
Your lived experience matters, please share your voice take the 15minute survey and help shape the future of kidney cancer care.
For info and to take the survey:
https://actionkidneycancer.org/.../the-5th-ikcc-global.../
#GlobalPatientSurvey
Today on World Cancer Research Day, EKPF and @IKCCorg launch the 2026-2027 Global Patient Survey on Kidney Cancer.
Patients, survivors & carers: share your experience and help shape future education, support and advocacy.
https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
📢 Today, on World Cancer Research Day, the 5th IKCC Global Patient Survey on Kidney Cancer is now open!
People who have been diagnosed with kidney cancer and carers are invited to share patient experiences and insights in the online survey:
https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
The survey identifies geographic differences in patients’ experiences to highlight best practices and unmet needs related to patients’ access to care, assess quality of life, determine the prevalence of shared decision-making, and measure involvement in clinical trials.
💙 Your experience matters. Share your voice and help shape the future of kidney cancer care. The survey takes around 15 minutes to complete: https://bit.ly/IKCC_Kidney_Cancer_Global_Survey
#KidneyCancer #KidneyCancerResearch #GlobalPatientSurvey #PatientVoice #CancerResearch
On first day of the #WorldCancerCongress in Hong Kong, Michael Jewett Past Chair of IKCC board, made a presentation about « Gaps in Kidney Cancer Care in Low- and Middle Income vs. High Income Countries: IKCC Global Patient Survey Results ».
Next week, on 1 October, Olivier Exertier will be at the #EuropeanParliament to officially launch the new EAU Kidney Cancer White Paper: Closing the Gap to Better Outcomes in Europe.
Join us at the European Parliament, with MEP Tilly Metz and MEP Romana Jerkovic, for the official launch and a discussion on how Europe can turn these recommendations into action.
📅 1 October 2026
🕛 12:00–13:15
📍 European Parliament, Brussels
Registration via this form is required:
#KidneyCancer #EUHealth #CancerPolicy #EUCancerPlan
Please fill out this form
buff.ly
Our September newsletter is here! 🌍
Discover the latest from the global kidney cancer community, including the launch of the 5th Global Patient Survey, research updates, global collaborations and more.
Read it here: https://buff.ly/8SEi5gE
#KidneyCancer #IKCC
Did you know?
Kidney cancer is often found by accident.
Kidney cancer is the 14th most prevalent cancer worldwide.
About 59 per cent of kidney cancer cases occur in more developed countries.
Our Global Network
IKCC welcomes every organisation that has an interest in kidney cancer and who pledges to conform to our Code of Conduct. We extend an open invitation to become part of this international network.
Join our mailing list
In the newsletter we highlight news about kidney cancer diagnosis and treatment, and other relevant discussions.