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WELCOME to IKCC (International Kidney Cancer Coalition)mission_on_ikcc.org

IKCC is an independent and democratic network of patient support and advocacy organizations established with the mission of improving the quality of life of patients and their families living with kidney cancer. IKCC provides information, support and assistance to national kidney cancer organizations. All organizations are welcome to participate.

 

 

4th IKCC Conference

3rd – 5th April 2014

Amsterdam, The Netherlands

 

Over 50 delegates from around the world attended our 4th IKCC conference held in Amsterdam. We were pleased to welcome back many kidney cancer advocates – and meet new groups and individuals for the very first time. From the Ukraine to Portugal, from China to Brazil, you came to collaborate, share best practices, exchange experiences and take away information to help kidney patients in your country.

Thank you to our expert speakers from Uganda, Netherlands, Germany, Canada, France, U.S.A, and U.K. We appreciate you spending these days with us and getting to know the international networks of kidney cancer advocates.

Feedback from participants so far has been very positive such as: ‘It was really an important experience for me, as well as for kidney cancer patients in my country. Great speakers and interesting motivating stories!’

We hope that you travelled home safely – and that you will share your knowledge and inspiration with others.

Below please find below some links to blogs/feedback already posted by our attendees:

Joyce Graff, Powerful Patient

http://www.powerfulpatient.org/kidney-cancer-support-groups-sharing-ideas/

Professor Michael Herbst, The Cancer Association of South Africa

http://www.cansa.org.za/cansa-at-the-international-kidney-cancer-coalition-conference-april-2014/

Lizzie Perdeaux, Myrovlytis Trust

http://www.bhdsyndrome.org/forum/bhd-research-blog/highlights-from-the-4th-international-kidney-cancer-coalition-conference/

Inna Krulko, Ukrainian Union of Patients Organisations

http://bit.ly/1kWY4FQ

Kirren Grennan, Kidney Health Australia

http://kidneycancer.org.au/

 

 

Today, which marks World Cancer Day 2014, a unique group of patient advocacy organisations, healthcare leaders and Members of the European Parliament against Cancer (MAC) will come together to launch the brand new European Cancer Patient’s Bill of Rights in the European Parliament in Strasbourg.

IKCC welcomes the launch of the Cancer Patient's Bill of Rights, which is the result of over two years of work and widespread engagement led by the European Cancer Concord (ECC) and is a call to action to address the significant disparities that exist for European cancer patients today.

For further information please click here

ECC Cancer Patient's Bill of Rights click here.